Who we are
The HeartLife Foundation is Canada’s first – and only – national patient-led heart failure organization. We are a Federal Not-for-Profit aimed at raising public awareness of heart failure, engaging patients, families and caregivers to provide education and mentorship, help facilitate access to the latest innovations and therapies, and advocate better care for all. Charitable status is currently under review.
We aim to empower patient voices to stimulate dialogue, advance understanding, improve access to treatments and research, raise heart failure awareness, and improve patient care in Canada.
WhaT WE AIM TO DO
We aim to collaborate with patients, stakeholders in healthcare, government, and industry to:
Establish a strong, critical voice for heart failure patients in Canada;
Raise public awareness of heart failure and advocate for better care;
Collaborate with all stakeholders to ensure patient access to the latest innovative research and therapies;
Mentor, support, and guide patients, families in times of need;
Educate and empower patients to effectively self-manage their illness;
Build local, regional, and a national network of membership of heart failure advocates.
Why We Do It
An estimated 600,000 people are currently living with heart failure in Canada (Heart & Stroke Foundation, 2016). In their 2016 Report on the health of Canadians, the Heart & Stroke Foundation estimates that 50,000 Canadians are diagnosed with heart failure each year and this number is on the rise. Heart failure costs the Canadian healthcare system more than $2.8 Billion dollars per year – with the majority of those dollars being spent on acute care. Research has shown that effective patient engagement improves clinical outcomes, prevents hospitalizations, increased patient self-efficacy for managing their condition, and overall quality of life. Despite these findings, few organizations currently exist to help heart failure patients self-manage their condition, provide education and support for patients and families, and advocate for access to care and innovative treatments. The HeartLife Foundation was created in response to this need.